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Channel: Specific Carbohydrate Diet for a Kid with Crohn's Disease
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8 Months...

I've not really intended to update this blog only monthly, but sitting back and reviewing the previous month seems like a natural thing to do (rather than daily or weekly) with this diet. Last Saturday...

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Solid

We've had a great stretch of solid stools. Who would've thought I'd cheer for my son's pooh's? Four *solid* days, little blood, and clearly feeling good, this may be a fluke but we'll take it! Today...

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Back for a Follow-Up

It's time to get rid of Entocort. The only good thing that it did was make my son learn how to swallow a horse-size pill. He throws those two pills back with breakfast every morning all by himself like...

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Weaning off Entocort, on to Enteral Nutrition

That's the outcome of the GI appointment this week. We're meeting with a nutritionist on Wednesday to determine how many shakes to drink each day and how to proceed with getting insurance coverage for...

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Absorb Plus

One quick note about the Absorb Plus EN product we've been trying.  Of any food/supplement we've ever given our son, I've never seen anything move from one end to the other more quickly than the...

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From SCD to EleCare

Our boy will spend the next 8-10 weeks off of the SCD and instead will be drinking vanilla EleCare. It's a big change, for sure, but one that will hopefully get the inflammation under control --...

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Beginning Our Journey on Elecare

Today marks the second day of the Elecare diet! At least 50 ounces a day is the goal. We are making our son an Elecare calendar to help celebrate his success each and every day since we know this is...

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EleGood

Cyrus is doing a fantastic job with the EleCare. In the last three days, he's had about 46-50 ounces each day -- which is roughly 1500 calories. Stools are still runny, but less frequent (~ 2/day).We...

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2 pounds

2 pounds gained on EleCare in one week. What more is there to say? Fantastic! At least for us, going from 36 pounds to 38 pounds is a big deal. Still a little blood, but not that bad -- stools are...

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Weight

2.5 pounds in 9 days and feeling great. Tons of energy and doing a great job with EleCare.

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3 Weeks

Today marks three weeks on enteral nutrition. Our son has gained 3 pounds in 3 weeks and continues to have a lot of energy. The most I have seen from him in a long time which is wonderful to see. He...

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Updates

The Positives:Cyrus is averaging a pound a week right now on EleCare. 3.5 pounds in 3.5 weeks. The past couple of days have yielded little or no blood and... solid-ish bunny turd-like stools. Amazing....

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Updates

It's been a few months since we've updated this blog. Our son started on a 12-week course of nothing but EleCare. Without any additional meds, EleCare put him into remission. His CD symptoms/blood...

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6 Months with Enteral Nutrition

We surpassed the 6-month mark since abandoning 100% SCD and Entocort, and entered the enteral nutrition world. I am amazed at so many aspects of EN: how well it works, how surprised our son's GI doc is...

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We've Found Our Groove

We have been in a pattern since the summer: 1-2 weeks of 100% EleCare followed by 4-6 weeks of regular food supplemented with EleCare. The first signs that we need to jump back on EleCare are a skin...

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March 2011 Update

Wow - time flies when you have three kids age 5 and under... my last update was in December! I'll keep updating when there are CD events going on or when anyone has questions (thanks Savannah's...

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A Local Broadcast

My wife and I caught this story about six months ago... a story about a local kid who has tried EN for CD:News Link

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Kindergarten

Our son started kindergarten a few months ago and is eating it up. Well, recently, he's been drinking it up as he just finished a week-long round of nothing but EleCare. When he had his first round of...

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EleCare / Enteral Nutrition Update

Our first post in 2012! I'm happy to report that our lack of posting is due to a lack of Crohn's related issues to report. Crohn's disease has not been the major health impediment to my son that I know...

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Foods

I also wanted to say that we've re-introduced an old SCD favorite back into our son's diet: homemade yogurt... which is so good that both of our other non-CD kids prefer it to store-bought as well! Our...

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Acid Reflux

One of the things we're battling right over the last few days (and since CD diagnosis) is acid reflux. The last two dinners we had pork chops marinated in Italian dressing and some cantaloup on the...

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First Grade

We're now one-month into first grade and things are great Crohn's-wise. Birthday parties are kind of brutal, as cake frosting seems to send our son into a flare-up. A few days of EleCare fixes him...

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March 2013 Update

It's been a year and a half since our last GI appointment and, for a couple of reasons, we decided it would be a good idea to go get a checkup. First, we wanted to check our son's lab work and growth...

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Small Flare

About two weeks ago, I noticed our son's attitude souring a bit. He tended to get irritated by anything and everything. I then asked him to do a stool check and could tell things may be starting to go...

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November 2014

As our son's grandfather was just recently diagnosed with Crohn's Disease, I am now revisiting some of the posts from prior years. The SCD path we took makes me so sad in light of what we've...

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